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Small Portion of a Life's Journey

Small Portion of a Life's Journey

hydranjourney.blogspot.com

by AliNichole0619

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by AliNichole0619

Created 5/28/09

An informative blog from my perspective, as a mother of a child with hydranencephaly. A "terminal" condition in which a portion of the brain is replaced with sacs of cerebrospinal fluid.

eeg, compassion, feeding special needs children, gtube, phenobarbitol, nasty remarks, rude people, seizures, ketogenic diet, medically fragile